Education changes understanding; insights reveal real needs;
ecosystem collaboration drives action; global bridges amplify impact.
We translate complex issues in genetics, rare diseases, and the patient journey into knowledge that can be understood by patient families, the public, and professional partners.
Selected workRare Diseases: Born to Challenge — Heartwarming Science Series; "Wonder Under the Rainbow", Training Course on Rare Disease Education and Genetic Counseling
We identify real needs from disease information, patient experience, community action, and ecosystem resources, generating patient and community insights that can inform decision-making.
Selected work2021 Landscape Report of Rare Disease in China; 2026 Comprehensive Landscape of Rare Disease Patient Communities in China
We connect patient communities, clinical experts, nonprofit organizations, research institutions, companies, media, and public resources to enable collaboration around real-world needs.
Selected work"In Search of Rare Disease Medical Heroes", Public Advocacy Campaign; "Meet You in 1/10,000", Public Education Video & Art Exhibition
We translate the experience, needs, data, and action insights of China's rare disease patient communities into knowledge that international partners can understand and use.
Selected workInternational conference presentations at WODC｜APARDO｜DIA
Data as of June 2026.
