A Path of Action

From education and training to patient community insights, Wonder Sir's work has always grown from the real needs of patients and families.

  1. 2016

    A Cartoon History of Genetics

    • 18 milestone events in the history of genetics and the scientific stories behind them
    • Published in 2018
  2. 2017

    Rare Diseases: Born to Challenge — Heartwarming Science Series

    • China's first public oriented rare disease science series
    • Co-produced with the Illness Challenge Foundation
    • Published in 2025
  3. 2018

    "My Inner Self" — Self-Portrait Campaign

    • Rare disease patients from 16 provinces and municipalities
    • 32 rare diseas communities involved
  4. 2019

    "In Search of Rare Disease Medical Heroes" — Public Advocacy Campaign

    • Co-created with 52 rare disease patient communities across China
    • Connected 5,000 healthcare professionals in the rare-disease field
  5. 2020

    Rare Diseases: The Healing Heart — Medical Humanities Column

    • Supported by the China Alliance for Rare Diseases
    • Provided primary care and frontline healthcare professionals with in-depth rare disease knowledge and practical diagnostic and care experience
  6. 2021

    "Wonder Under the Rainbow" — Training Course on Rare Disease Education and Genetic Counseling

    • China's first interactive course for patients, families and medical students
    • 8 months of co-learning|20 sessions
    • 15 patient communities|41 medical students
  7. 2022

    When the Rare Is Understood

    • China's first innovative educational documentary on rare diseases
    • 400K+ online views
  8. 2023

    "Meet You in 1/10,000" — Public Education Video & Art Exhibition

    • Co-organized with the Shanghai Rare Disease Prevention and Control Foundation, Shanghai Education Television Station, and Shanghai Science & Technology Development Foundation
    • Hosted at Cheng Shifa Art Museum and Shanghai World Expo Exhibition and Convention Center
    • Annual public reach: 10M+
  9. 2024

    Rare Diseases: A Journey Toward the Light — Industry Leaders Column

    • Each issue features one “Light Chaser” sharing their life story and unique bond with rare diseases
    • Amplifying voices across sectors, including physicians, patients, scientists and public-welfare advocates
    • Piecing together individual glimmers of hope to present a mosaic of China's rare disease ecosystem
  10. 2025

    "Healthy Births, Zero Genetic Regret" — Reproductive Care Initiative for Genetic Disease Families

    • Jointly initiated with Shanghai First Maternity and Infant Hospital
    • Collaborated with 18 rare-disease patient communities across China
    • 21 educational live streams|140 pro-bono consultations
  11. 2026

    2026 Comprehensive Landscape of Rare Disease Patient Communities in China

    • Covering 207 patient communities
    • The first comprehensive view of China's patient-community ecosystem